Today Cathy had a tunneled peritoneal drainage catheter placed in her abdomen by Dr Slaby at Parkview hospital. This was an outpatient procedure and she tolerated it well. During the procedure they drained 5 liters of fluid from her abdominal area. This catheter will allow Cathy to drain the extra fluid (ascites) at home. Initially, she will have a home health care nurse demonstrate and assist her. Please pray that this will provide relief from the pressure and pain. Pray also that no infection will develop.
Thank you to all who have brought over meals or provided gifts at Christmas. I was able to see some of those smiles!!
Gratefully,
Lori
Tuesday, December 31, 2013
Monday, December 30, 2013
Had our weekly visit at the Parkview Ortho this morning. Hemoglobin is lower than last time at 9.5, but not low enough to warrant a transfusion. Her blood pressure is low (80/44). Did not get the rest of the blood work totals yet. We will be going back to Parkview @ 6:30 am Tuesday to get a catheter put in and drain fluid off her abdomen. (probably be there till mid-afternoon) Since her last paracentisis, she has regained all the fluid plus about 12 pounds more! With the catheter, she will be able to 'self-drain' at home. We will be getting instruction on how to care/drain from a visiting nurse and maybe some type of home care for Cathy. Please pray that the procedure will go well and that she will be able to get this fluid off as it is making her very uncomfortable and causing back pain issues. Thank you for all your prayers and support throughout 2013. Wishing you all a happy and prosperous New Year!
Mike
Mike
Saturday, December 21, 2013
Sorry for the delay in the up-date. We got back from Chicago around 5 pm on Thursday and I went to work to cover for a coworker and I haven't had any time since then to do the blog.
We got in and out of the hospital within a 3 hour span. The nurses and Doctor were the same ones who put Cathy's port in almost 2 years ago---they are a wonderful group of people! They were able to get approximately 3 liters of fluid from her abdomen (about 12 pounds!). She was able to get instant relief from the pressure as they began to drain the fluid. While she was resting from that procedure, the heart nurse came up to her bed and did the echo cardiogram. (Talk about service!) We won't get the results from that until Monday, along with the tests on the fluid taken from her. There is still swelling, but she is able to function better than before. She seems to get REALLY tired later in the day--that does concern me, but I am keeping an eye on her. We go to the Oncologist at Parkview Hospital again on Monday to once again check her hemoglobin levels. Her blood test results that were taken on Wednesday at the Block Center came back improved from previous tests! (That was BEFORE she had the drainage done!) We are thankful to God for that! We still need prayer for the test on the fluid to come back negative for cancer and what direction to take as far as the treatments are concerned. (Her bilirubin total was at 1.1 on her last blood draw--which means ALL options are still on the table for treatment). Thank you for your prayers!
Mike
We got in and out of the hospital within a 3 hour span. The nurses and Doctor were the same ones who put Cathy's port in almost 2 years ago---they are a wonderful group of people! They were able to get approximately 3 liters of fluid from her abdomen (about 12 pounds!). She was able to get instant relief from the pressure as they began to drain the fluid. While she was resting from that procedure, the heart nurse came up to her bed and did the echo cardiogram. (Talk about service!) We won't get the results from that until Monday, along with the tests on the fluid taken from her. There is still swelling, but she is able to function better than before. She seems to get REALLY tired later in the day--that does concern me, but I am keeping an eye on her. We go to the Oncologist at Parkview Hospital again on Monday to once again check her hemoglobin levels. Her blood test results that were taken on Wednesday at the Block Center came back improved from previous tests! (That was BEFORE she had the drainage done!) We are thankful to God for that! We still need prayer for the test on the fluid to come back negative for cancer and what direction to take as far as the treatments are concerned. (Her bilirubin total was at 1.1 on her last blood draw--which means ALL options are still on the table for treatment). Thank you for your prayers!
Mike
Wednesday, December 18, 2013
Cathy & I are here in Chicago at the Hampton Inn across from the Block Center. We had our consultation with Dr. Block and we are set up to do an ultrasound with a possible parasentesis (if there is enough fluid to remove) She is also getting a heart echo beginning at 8:00 am at St. Francis Hospital (same place she had her port put in).
Dr. Block is waiting to get results form the blood test we had taken this morning as well as the hospital procedures being done tomorrow before he discusses future options. He says that if the bilirubin count gets to 2 or above, the options get narrowed down for treatment. Those numbers would indicate that the liver cannot function well enough to process any type of chemo--not necessarily a BAD thing as the chemo side effects have been very hard on Cathy. The biggest thing we need to get under control is the swelling. We are hopeful that the doctors will be able to drain a LOT of fluid tomorrow, or give us some viable options. (Cathy has gained about 30 pounds of fluid weight since last visit).
Dr. Block ruled out the high dose vitamin 'c' at this point as it would add fluid to her current condition. However, he did say that there is a hormone blocker (Faslodex) which could be used in conjunction with the herceptin (it would NOT be processed by the liver that might be beneficial when we return for treatment. He suggested that we 'call it a day' after the hospital visit tomorrow and return next week for treatment--if we decide what we want to do.
We would appreciate prayer for the hospital procedures tomorrow and that we would get beyond the fluid retention so we can get back to the assault on the cancer. We will post again tomorrow after we get all the tests results and let you know the latest. Thank you for your perserverance during this fight. God bless.
Mike
Dr. Block is waiting to get results form the blood test we had taken this morning as well as the hospital procedures being done tomorrow before he discusses future options. He says that if the bilirubin count gets to 2 or above, the options get narrowed down for treatment. Those numbers would indicate that the liver cannot function well enough to process any type of chemo--not necessarily a BAD thing as the chemo side effects have been very hard on Cathy. The biggest thing we need to get under control is the swelling. We are hopeful that the doctors will be able to drain a LOT of fluid tomorrow, or give us some viable options. (Cathy has gained about 30 pounds of fluid weight since last visit).
Dr. Block ruled out the high dose vitamin 'c' at this point as it would add fluid to her current condition. However, he did say that there is a hormone blocker (Faslodex) which could be used in conjunction with the herceptin (it would NOT be processed by the liver that might be beneficial when we return for treatment. He suggested that we 'call it a day' after the hospital visit tomorrow and return next week for treatment--if we decide what we want to do.
We would appreciate prayer for the hospital procedures tomorrow and that we would get beyond the fluid retention so we can get back to the assault on the cancer. We will post again tomorrow after we get all the tests results and let you know the latest. Thank you for your perserverance during this fight. God bless.
Mike
Tuesday, December 17, 2013
On Monday (16th) we went for our weekly blood check at Parkview Oncology. We are pleased to report that Cathy's hemoglobin has returned to 'normal' at 10.5---which means no blood transfusion! That's the good news (Praise the Lord!), however the nurse did tell us that there is nothing they can do about the swollen abdomen because the cancer in the liver is causing the swelling and until we deal with that it will not get any better. If we can not get that swelling under control (i.e. the cancer), her liver will eventually fail.
We are headed back to the Block Center in Chicago on Wednesday to our regular Oncologist to discuss what options are available--other than chemo. At this point in time, we really don't want to put any more poisons in her body. If necessary, we will spend the night. We may see if we can do another ultrasound to check for any fluid that can be removed to help relieve the pressure.
We are thankful for all the support we have received from everyone who is "sharing in her suffering". We look forward to the victory that the Lord will give us over this cancer. I have been reminded of all the great things that our God has done throughout biblical history: adding 15 years to Hezekiah when he had a terminal illness--- Job and all his suffering and how God blessed the second part of his life more than the first--- All the miracles that were performed by our Saviour and His words...."I tell you the truth, anyone who has faith in me will do what I have been doing. He will do even greater things than these, because I am going to the Father. And I will do whatever you ask in my name, so that the Son may bring glory to the Father. You may ask me for anything in my name, and I will do it." (John 14:12-14).
With God all things are possible and we know that He is able to do more than what we can hope or imagine----our prayer is that He would be WILLING. We also know that He is Sovereign and that He loves us more than we can fathom. IF He has chosen this method to take Cathy home and so glorify His Name through this process, we will STILL praise Him---He is worthy of that and so much more. We are HIS to do with as he pleases. Until that time, we will fight this battle with all that HE has made available to us.
Thank you for your continued prayers.
Mike
We are headed back to the Block Center in Chicago on Wednesday to our regular Oncologist to discuss what options are available--other than chemo. At this point in time, we really don't want to put any more poisons in her body. If necessary, we will spend the night. We may see if we can do another ultrasound to check for any fluid that can be removed to help relieve the pressure.
We are thankful for all the support we have received from everyone who is "sharing in her suffering". We look forward to the victory that the Lord will give us over this cancer. I have been reminded of all the great things that our God has done throughout biblical history: adding 15 years to Hezekiah when he had a terminal illness--- Job and all his suffering and how God blessed the second part of his life more than the first--- All the miracles that were performed by our Saviour and His words...."I tell you the truth, anyone who has faith in me will do what I have been doing. He will do even greater things than these, because I am going to the Father. And I will do whatever you ask in my name, so that the Son may bring glory to the Father. You may ask me for anything in my name, and I will do it." (John 14:12-14).
With God all things are possible and we know that He is able to do more than what we can hope or imagine----our prayer is that He would be WILLING. We also know that He is Sovereign and that He loves us more than we can fathom. IF He has chosen this method to take Cathy home and so glorify His Name through this process, we will STILL praise Him---He is worthy of that and so much more. We are HIS to do with as he pleases. Until that time, we will fight this battle with all that HE has made available to us.
Thank you for your continued prayers.
Mike
Friday, December 6, 2013
Low Hemoglobin, High Tumor Markers
On Wednesday afternoon, December 4th, Cathy went to the Parkview Emergency room with a dangerously low hemoglobin count of 5.3. They administered 2 units of blood. When she left on Thursday morning the count had risen to 7.9. The normal range is 12-15. Her stool sample tested positive for blood. Between the Block Center and Parkview it was determined that there must be some type of internal bleeding. While chemotherapy can cause a drop in hemoglobin, it doesn't account for such a low level.
Late this afternoon Cathy had an Upper GI endoscopy. The endoscope revealed 2 ulcers in the gastric antrum and 5 duodenal ulcers. While none of them were bleeding at the time, they can account for the low hemoglobin. She also has enlarged veins and swelling in her esophagus. We were so fortunate to be able to have Dr Wiersema perform the procedure. He will currently treat her with 40 mg of Prilosec per day unless the biopsies reveal a bacteria infection. Chemotherapy can cause "stress ulcers."
Cathy's last round of chemotherapy was on November 20th. Since that time she has suffered from these different side effects; swelling in the abdomen and legs, mouth and throat sores, fatigue, rapid heart beat, blood in her stool, anemia and nose bleeds.
While at home, she is extremely weak and is scheduled to receive more blood on Monday if needed.
Mike was given the most recent results of her tumor markers. On August 23rd the CA 27.29 marker was at 368, today it has risen to 3,138. The antigen 15-3 marker had been at 391 but it has risen to 3,320.
With all of these side effects and rising tumor markers please pray that they do not make the wrong turn in deciding future treatments. Pray that Cathy's body will quickly respond to the blood infusions and Prilosec and that she will regain her health and strength.
If you have any questions please call me at 260-459-0254.
Gratefully,
Lori
Late this afternoon Cathy had an Upper GI endoscopy. The endoscope revealed 2 ulcers in the gastric antrum and 5 duodenal ulcers. While none of them were bleeding at the time, they can account for the low hemoglobin. She also has enlarged veins and swelling in her esophagus. We were so fortunate to be able to have Dr Wiersema perform the procedure. He will currently treat her with 40 mg of Prilosec per day unless the biopsies reveal a bacteria infection. Chemotherapy can cause "stress ulcers."
Cathy's last round of chemotherapy was on November 20th. Since that time she has suffered from these different side effects; swelling in the abdomen and legs, mouth and throat sores, fatigue, rapid heart beat, blood in her stool, anemia and nose bleeds.
While at home, she is extremely weak and is scheduled to receive more blood on Monday if needed.
Mike was given the most recent results of her tumor markers. On August 23rd the CA 27.29 marker was at 368, today it has risen to 3,138. The antigen 15-3 marker had been at 391 but it has risen to 3,320.
With all of these side effects and rising tumor markers please pray that they do not make the wrong turn in deciding future treatments. Pray that Cathy's body will quickly respond to the blood infusions and Prilosec and that she will regain her health and strength.
If you have any questions please call me at 260-459-0254.
Gratefully,
Lori
Wednesday, November 20, 2013
Change of Treatment to Taxotere/Herceptin
Sitting here at the Block Center anxiously awaiting treatment to finish---the first day of a new treatment is always longer due to the fact that they want to make sure there are no reactions to the new drug.
Per our nurse, Erica, Cathy's vital signs are good and she did a blood draw for baseline tumor markers (as we are starting a new treatment plan).
We met with Dr. Uhdrain first to discuss the new regimen and the common side affects of Taxotere which include:
low white blood cell count, retaining fluid (including swelling in the hands or feet), nausea, diarrhea, hair loss, feeling weak, low red blood cell count (anemia), rash ---which can be severe. There is also a side effect called 'green nail syndrome' which is common but not often seen here at the Block Center because of the holistic approach they take with the treatment, plus they gave Cathy 'ice gloves and shoes' to wear during her treatment as an added precaution (Brrrrrr!). They address the 'rash' side effect with a steroid (decadron) which has to be taken the day before treatment, the day of treatment, and the day after.
Note that she will have to continue the Neulasta shot the day following treatment. This is to maintain a proper level of platelet count (white blood cells).
We met with the Nutritionist next (Jacki) and she discussed the lab results from our nutrional panel that we had drawn last month. She prioritized the supplements that NEED to be taken or restarted (Cathy has had NO supplements since her abdominal swelling began at the end of September). The 'Big 3" were: Milk thistle (addresses the liver), COQ10 (for the heart---due to herceptin), and Vitamin C (keep immunity up). She can take the others as she is able (due to the abdominal swelling)
Finally, we met with Dr. Block and he went over Cathy's blood work. Her liver enzymes came down from the previous blood draw (that's good!), however, her bilirubin count (which indicates how the liver is functioning) does concern him a little. The 'normal' range is 0-1 and it has been running .4 to .8, but this time it is at 1.1, which is now in the high zone. Cathy is not showing signs of jaundice (that's good), but he wants us to have a GI specialist or liver doctor available just in case. If the levels continue to elevate and jaundice sets in, she may have to have a stent put in to relieve the bile. We pray that we will not reach that point! He also wanted to reassure us that there are many more treatment choices, as well as, some new immune therapies coming down the road (1-5 yrs)---that was in response to a question I had asked about 'what if' this treatment doesn't do the job.
Cathy remains to be extremely thankful for the opportunity to obtain treatment @ the Block Center, and the faithful prayers offerred on her behalf. This journey of restoring her body to health doesn't end once she is in remission, but will be a lifetime commitment of doing what it takes to maintain a well status. May God daily grant her the strength and humility for this task he has given her.
~Mike
Per our nurse, Erica, Cathy's vital signs are good and she did a blood draw for baseline tumor markers (as we are starting a new treatment plan).
We met with Dr. Uhdrain first to discuss the new regimen and the common side affects of Taxotere which include:
low white blood cell count, retaining fluid (including swelling in the hands or feet), nausea, diarrhea, hair loss, feeling weak, low red blood cell count (anemia), rash ---which can be severe. There is also a side effect called 'green nail syndrome' which is common but not often seen here at the Block Center because of the holistic approach they take with the treatment, plus they gave Cathy 'ice gloves and shoes' to wear during her treatment as an added precaution (Brrrrrr!). They address the 'rash' side effect with a steroid (decadron) which has to be taken the day before treatment, the day of treatment, and the day after.
Note that she will have to continue the Neulasta shot the day following treatment. This is to maintain a proper level of platelet count (white blood cells).
We met with the Nutritionist next (Jacki) and she discussed the lab results from our nutrional panel that we had drawn last month. She prioritized the supplements that NEED to be taken or restarted (Cathy has had NO supplements since her abdominal swelling began at the end of September). The 'Big 3" were: Milk thistle (addresses the liver), COQ10 (for the heart---due to herceptin), and Vitamin C (keep immunity up). She can take the others as she is able (due to the abdominal swelling)
Finally, we met with Dr. Block and he went over Cathy's blood work. Her liver enzymes came down from the previous blood draw (that's good!), however, her bilirubin count (which indicates how the liver is functioning) does concern him a little. The 'normal' range is 0-1 and it has been running .4 to .8, but this time it is at 1.1, which is now in the high zone. Cathy is not showing signs of jaundice (that's good), but he wants us to have a GI specialist or liver doctor available just in case. If the levels continue to elevate and jaundice sets in, she may have to have a stent put in to relieve the bile. We pray that we will not reach that point! He also wanted to reassure us that there are many more treatment choices, as well as, some new immune therapies coming down the road (1-5 yrs)---that was in response to a question I had asked about 'what if' this treatment doesn't do the job.
Cathy remains to be extremely thankful for the opportunity to obtain treatment @ the Block Center, and the faithful prayers offerred on her behalf. This journey of restoring her body to health doesn't end once she is in remission, but will be a lifetime commitment of doing what it takes to maintain a well status. May God daily grant her the strength and humility for this task he has given her.
~Mike
Thursday, November 14, 2013
After a 25 minute phone consult w/Dr. Uhdrain, my oncologist @ the Block Center, Mike and I will head to Chicago next Wednesday. I will commence with chemo--Taxotere plus Herceptin this time. I should expect some hair loss, but less risk for neuropathy. Looking forward to getting beyond this "bump" in the road.
Please, continue to pray that my body will respond favorably to this new drug, and that side effects will be minimal. Regardless, that my heart will remain thankful and my attitude positive.
:)
Please, continue to pray that my body will respond favorably to this new drug, and that side effects will be minimal. Regardless, that my heart will remain thankful and my attitude positive.
:)
Wednesday, November 13, 2013
Liver Biopsy Results - Kadcyla
Cathy met with Dr Wiersema to discuss the liver biopsy. The liver tissue samples were sent to a liver specialist, Dr Oscar Cummings, at the Indiana University of Medicine. His pathology report does not show cirrhosis or regenerative nodular hyperplasia due to Kadcyla. It did show the cancer cells. I quote, "Tumor is surrounded by desmoplastic fibrous tissue with foci of necrosis. Normal liver tissue present shows no evidence of nodular regenerative hyperplasia."
In layman's terms, the biopsy did not show a "reaction" to the Kadcyla but things have gotten worse while on this drug. He did comment that the liver tissue surrounding the cancer is normal
The test results on the fluid drawn from Cathy's abdomen on Oct 22nd were negative for malignant (cancer) cells, it was also negative for fungus and bacterial growth.
Dr Wiersema had also run blood tests to check for other oddities such as hepatitis, they were all negative.
Cathy still has a distended stomach and it seems that the mystery has not been solved.
All of this information will be sent to Dr Block and his team. Cathy and Mike hope to meet with them next week. Please pray for wisdom, direction and the "peace of God which surpasses all understanding" for Cathy and Mike.
Gratefully,
Lori
In layman's terms, the biopsy did not show a "reaction" to the Kadcyla but things have gotten worse while on this drug. He did comment that the liver tissue surrounding the cancer is normal
The test results on the fluid drawn from Cathy's abdomen on Oct 22nd were negative for malignant (cancer) cells, it was also negative for fungus and bacterial growth.
Dr Wiersema had also run blood tests to check for other oddities such as hepatitis, they were all negative.
Cathy still has a distended stomach and it seems that the mystery has not been solved.
All of this information will be sent to Dr Block and his team. Cathy and Mike hope to meet with them next week. Please pray for wisdom, direction and the "peace of God which surpasses all understanding" for Cathy and Mike.
Gratefully,
Lori
Thursday, October 31, 2013
Biopsy went well!
Doctor Wiersema said that the procedure went well. He also commented that it was a "good thing" there was very little fluid at the incision site. The lab results will take one week. Cathy left the Lutheran Medical Park before 10 am with instructions to take it easy today. She is still waiting for the test results from last weeks paracentesis.
Lori
Lori
Tuesday, October 29, 2013
Liver Biopsy scheduled on October 31st
We met with Dr Wiersema, a local gastroenterologist. He will perform a liver biopsy at Lutheran Medical Park, Thursday morning at 8:15 am. He was very thorough and kind to us. He even showed us the CT Scan results on the computer and compared the July scan with the Oct scan. That is the first time we have been able to see her liver.
Cathy will have blood work drawn tomorrow morning to determine the platelet count. It has to be at least 80k or he will not do the procedure because of the risk of bleeding. He also requested a typical liver serology (bloodwork.)
Cathy will have blood work drawn tomorrow morning to determine the platelet count. It has to be at least 80k or he will not do the procedure because of the risk of bleeding. He also requested a typical liver serology (bloodwork.)
We are grateful that this doctor was willing to see Cathy so quickly and perform the procedure in Fort Wayne. Please pray that these new tests will accurately provide the necessary information to determine the course of treatment.
Lori
Tuesday, October 22, 2013
31st Trip to the Block Center
Dear Friends and Family,
Today, Cathy met with Dr. Udhrain at the Block Center. The discussion centered around her symptom of ascites (water retention in the peritoneal cavity) and the CT Scan which indicated cirrhosis of the liver.
He said that 3 things could be causing ascites; liver inflammation, cirrhosis of the liver or cancer. The mention of cirrhosis on the scan is puzzling because it cannot be defined by an image and it never happens immediately. Normally, cirrhosis takes years to develop not weeks. He recommended a liver biopsy to determine what is actually happening. He also sent Cathy to have the ascites drained at the Swedish Covenant Hospital in Chicago. That procedure only resulted in 20 cc of fluid which is equal to 4 teaspoons of liquid - so Cathy still looks somewhat "pregnant" (Mike's terminology). Again, this seems to be another mystery. Given the size of her stomach we expected more fluid.
With all this uncertainty and the fact that Cathy's liver enzymes are still rising, Dr Udhrian stopped the Kadcyla treatments. He mentioned two other chemo treatments that can be used in conjunction with Herceptin. They are Navelbine and Taxotere. He is giving Cathy and Mike time to research and decide which option to choose.
From a cancer standpoint - nothing is growing or getting worse. Good news!
Please pray that God would grant wisdom to Mike and Cathy as they proceed to schedule the biopsy and new treatment for next week. Pray also that the doctors would be able to accurately interpret the tests results.
We are very grateful for your continued interest, support and prayers. God has protected us and guided us through 31 trips to Chicago. What mercy and grace he has bestowed!!
Blessings,
Lori
P.S. This is a shout out to Mike who drives the entire trip while enduring all the chatter between Cathy and myself. It also allows me time to research and update the blog. And we even have the opportunity to listen to a sermon from our local pastors!
Today, Cathy met with Dr. Udhrain at the Block Center. The discussion centered around her symptom of ascites (water retention in the peritoneal cavity) and the CT Scan which indicated cirrhosis of the liver.
He said that 3 things could be causing ascites; liver inflammation, cirrhosis of the liver or cancer. The mention of cirrhosis on the scan is puzzling because it cannot be defined by an image and it never happens immediately. Normally, cirrhosis takes years to develop not weeks. He recommended a liver biopsy to determine what is actually happening. He also sent Cathy to have the ascites drained at the Swedish Covenant Hospital in Chicago. That procedure only resulted in 20 cc of fluid which is equal to 4 teaspoons of liquid - so Cathy still looks somewhat "pregnant" (Mike's terminology). Again, this seems to be another mystery. Given the size of her stomach we expected more fluid.
With all this uncertainty and the fact that Cathy's liver enzymes are still rising, Dr Udhrian stopped the Kadcyla treatments. He mentioned two other chemo treatments that can be used in conjunction with Herceptin. They are Navelbine and Taxotere. He is giving Cathy and Mike time to research and decide which option to choose.
From a cancer standpoint - nothing is growing or getting worse. Good news!
Please pray that God would grant wisdom to Mike and Cathy as they proceed to schedule the biopsy and new treatment for next week. Pray also that the doctors would be able to accurately interpret the tests results.
We are very grateful for your continued interest, support and prayers. God has protected us and guided us through 31 trips to Chicago. What mercy and grace he has bestowed!!
Blessings,
Lori
P.S. This is a shout out to Mike who drives the entire trip while enduring all the chatter between Cathy and myself. It also allows me time to research and update the blog. And we even have the opportunity to listen to a sermon from our local pastors!
Friday, October 18, 2013
UPDATE
Day 4 on baby dose of two diuretics--Aldactone and Lasix. Something proactive I can do to try and reduce distention of abdomen. Guess they are working, though ever so slowly, since I can now look down and see my toes. Oh, how thankful we can be for such little things in life.
My appointment @ the Block Center is still on for the 22nd. Per the oncologist, the etiology (cause/reason) of the cirrhosis and ascites is unknown. Our (hubby's and mine) personal suspicion is the Kadcyla (chemo), of which I've now had 6 rounds, the cause. This will be an interesting trip; hoping and praying for resolution. Dr. Uhdrain, the oncologist, indicated that should my liver enzymes continue to rise, he would discontinue the Kadcyla and start me on Herceptin + Navelbine (which I believe is another direct therapy). We'll see.
I must admit that this part of my journey has been particularly trying on my patience--never my strongest virtue. This week has been much better than last, so there can be no excuse for complaint (such an ugly word!). How can a person not be joyful, knowing that so very many people are praying
for us? A warm hug to each and every one of you.
My appointment @ the Block Center is still on for the 22nd. Per the oncologist, the etiology (cause/reason) of the cirrhosis and ascites is unknown. Our (hubby's and mine) personal suspicion is the Kadcyla (chemo), of which I've now had 6 rounds, the cause. This will be an interesting trip; hoping and praying for resolution. Dr. Uhdrain, the oncologist, indicated that should my liver enzymes continue to rise, he would discontinue the Kadcyla and start me on Herceptin + Navelbine (which I believe is another direct therapy). We'll see.
I must admit that this part of my journey has been particularly trying on my patience--never my strongest virtue. This week has been much better than last, so there can be no excuse for complaint (such an ugly word!). How can a person not be joyful, knowing that so very many people are praying
for us? A warm hug to each and every one of you.
Tuesday, October 8, 2013
Parkview Hospital Visit
This is an update for those who have been following the latest "side effects(?)" of Cathy's treatment on Wednesday. She started out with with her ankles swelling--this has happened before, though not to such extent---but the swelling went down by Friday. Then she began to 'retain' fluid in her belly area. It continued to swell until she 'felt 9 months pregnant'. That's when we went to the emergency room on Tuesday @ 2:15 pm. We thought they were just going to stick a needle in and drain the fluid, but not so fast!!---After running a blood test on her and finding her white blood cell count at 27,800 (normal range is 4,000 - 10,000), they decided to keep her overnight. Sooo, at 9:45 pm she was finally moved to a room up in Oncology (it was a busy day). They watched her overnight, and today, Wednesday, they took another blood test and did a CT scan. After 26 hours at the hospital we are now at home with a swollen stomach and a white blood count of 16,000. They said there was not enough fluid to drain it and the scan didn't show anything to indicate where the fluid was coming from. If it gets worse (such as difficulty in breathing) we are supposed to try it all over again! It was a very frustrating and unfruitful time. Regardless of the cause, cancer or the treatment, we have decided we will not be continuing her Kadcyla the next time we go to the Block Center. Please continue to pray for her stomach to return to normal and not get any worse. Thank you. ~Mike
Okay folks, I suppose there is a lesson to be learned in here somewhere. Pain (or discomfort) management is always frustrating for me. Always left feeling like an even bigger wimp. Please, pray that I am patient and endure well. ~Cathy
Okay folks, I suppose there is a lesson to be learned in here somewhere. Pain (or discomfort) management is always frustrating for me. Always left feeling like an even bigger wimp. Please, pray that I am patient and endure well. ~Cathy
Friday, October 4, 2013
Vacation & Results
Thank you to all who supported us (prayerfully and financially) on our trip out west! Cathy & I had a WONDERFUL time! I thought it had been since our honeymoon that we had made the trek out west (27 years ago), but we were reminded by a video recording which we watched while in Montana that we had, indeed, been there when our eldest, Adam, was 11 months old---we had BOTH forgotten about it!
The majestic mountains are always breathtaking, but the best part was being with family. Cathy has such a wonderful family---I am so blessed to be a part of that! Some of the highlights of the trip: Focus on the Family visit, Olympic Training Center, visiting my friend Dorothy---all in Colorado Springs; a visit to the Ball Metal Canning Plant---in Golden; National Bison Range and Glazier National Park---in Montana. My daughter allowed us to borrow her older camera, so we were able to take some nice pictures, as well.
We returned late Sunday from our vacation and Cathy's next Block Center visit was scheduled for Wednesday morning. She had to get her blood work done and a CT scan between Monday and Tuesday. On Wednesday, we met with Dr. Block to discuss the scan and course of action. The scan was "unremarkable" (i.e. unchanged) for the most part, with the exception of some signs of cirrhosis forming on the liver probably due to the Kadcyla drug she has been taking. The liver enzymes continue to trend slightly upward but the bilirubin counts (liver function) continue to be good. Dr. Block suggested that we 'stay the course' with the current treatment, at least until the next scan. His summary was that we had reached a plateau 'with a slight rise', but with stage 4 cancer this is still a good sign. The new drug she is taking may take a little longer to work; she is, after all, the first patient at Block to get this treatment. When Cathy asked him what else could SHE could do he suggested that we double her intake of Milk Thistle from 8 to 16 pills which should help fight the cirrhosis and he added another supplement to help in the cancer fight (Lutein).
So for now, we continue the fight and "run the race" as Paul encourages us. Thank you for your prayers and your support. We are so thankful and blessed that you share in this suffering and know that you also will rejoice in the victory on that day!
Blessings,
Mike (Cathy's husband)
The majestic mountains are always breathtaking, but the best part was being with family. Cathy has such a wonderful family---I am so blessed to be a part of that! Some of the highlights of the trip: Focus on the Family visit, Olympic Training Center, visiting my friend Dorothy---all in Colorado Springs; a visit to the Ball Metal Canning Plant---in Golden; National Bison Range and Glazier National Park---in Montana. My daughter allowed us to borrow her older camera, so we were able to take some nice pictures, as well.
We returned late Sunday from our vacation and Cathy's next Block Center visit was scheduled for Wednesday morning. She had to get her blood work done and a CT scan between Monday and Tuesday. On Wednesday, we met with Dr. Block to discuss the scan and course of action. The scan was "unremarkable" (i.e. unchanged) for the most part, with the exception of some signs of cirrhosis forming on the liver probably due to the Kadcyla drug she has been taking. The liver enzymes continue to trend slightly upward but the bilirubin counts (liver function) continue to be good. Dr. Block suggested that we 'stay the course' with the current treatment, at least until the next scan. His summary was that we had reached a plateau 'with a slight rise', but with stage 4 cancer this is still a good sign. The new drug she is taking may take a little longer to work; she is, after all, the first patient at Block to get this treatment. When Cathy asked him what else could SHE could do he suggested that we double her intake of Milk Thistle from 8 to 16 pills which should help fight the cirrhosis and he added another supplement to help in the cancer fight (Lutein).
So for now, we continue the fight and "run the race" as Paul encourages us. Thank you for your prayers and your support. We are so thankful and blessed that you share in this suffering and know that you also will rejoice in the victory on that day!
Blessings,
Mike (Cathy's husband)
Friday, September 13, 2013
Vacation Starts Early!!
Dear Family and Friends,
With the upcoming vacation and CT Scan, Cathy decided to delay her treatment. Yesterday, Dr Uhdrian, at the Block Center, graciously answered all our questions concerning the lab results, tumor markers, liver function and treatment options. He was also quite supportive of Cathy's decision.
With this reprieve from drugs, please pray for restoration, not only physically, but mentally, emotionally and spiritually.
I am so excited for Cathy and Mike's trip that I get goosebumps (and I'm not even going!) They will be visiting family and friends in Arvada, Colorado Springs, and Broomfield, Colorado then on to Polson, Montana. To be able to share time together on vacation is a rare event - perhaps a second honeymoon?? Pray also that their marriage will be strengthened.
I want to give a big shout out to those individuals that made this trip possible!!
Gratefully,
Lori
With the upcoming vacation and CT Scan, Cathy decided to delay her treatment. Yesterday, Dr Uhdrian, at the Block Center, graciously answered all our questions concerning the lab results, tumor markers, liver function and treatment options. He was also quite supportive of Cathy's decision.
With this reprieve from drugs, please pray for restoration, not only physically, but mentally, emotionally and spiritually.
I am so excited for Cathy and Mike's trip that I get goosebumps (and I'm not even going!) They will be visiting family and friends in Arvada, Colorado Springs, and Broomfield, Colorado then on to Polson, Montana. To be able to share time together on vacation is a rare event - perhaps a second honeymoon?? Pray also that their marriage will be strengthened.
I want to give a big shout out to those individuals that made this trip possible!!
Gratefully,
Lori
Sunday, September 8, 2013
Tumor Markers
Just want to let you all know that my tumor markers are trending upward. Not sure, yet, what this really means. My hunch is that the Kadcyla is not working. We will know for certain when results of CT scan are received. However, I will not have the scan until the first week in October.
Please, be in prayer that we would have wisdom in making the right decision for change in treatment should the scan, indeed, show movement in the wrong direction.
In the meantime, we remain in peace that the Most High God is in control.
Ah, Sovereign Lord, you have made the heavens and the earth by your great power and outstretched arm. Nothing is too hard for you. Jeremiah 32:17
Please, be in prayer that we would have wisdom in making the right decision for change in treatment should the scan, indeed, show movement in the wrong direction.
In the meantime, we remain in peace that the Most High God is in control.
Ah, Sovereign Lord, you have made the heavens and the earth by your great power and outstretched arm. Nothing is too hard for you. Jeremiah 32:17
Saturday, August 24, 2013
28th Treatment at the Block Center
Sunny greetings to all! We rejoice in this beautiful summer weather.
Friday, we met with Jen who was quite patient with all of our questions (Thank you, Lord). We really appreciate the wonderful staff at the Block Center. So join with us on the learning curve of this new drug, Kadcyla, as Cathy received her fifth treatment.
Concerning the blood platelet count, the threshold for Kadcyla is 80,000. Since Cathy's platelets were at 85,000 they administered the normal dose at the usual time of 45 minutes. Now they have a history of the rate that Cathy's body replenishes her platelets. On August 16th they were 71,000 and rose to 85,000 on August 21st. This will be a good reference point.
In questioning the white blood cell count, the Block Center focuses on a white blood cell listed as "Neuts Absolute" on the lab report. This time it was low and Jen strongly suggested that Cathy return to the Neulasta shot. This will boost the "neutrophils" and help her body fight off any infection. Jen also said that Neulasta is Cathy's insurance policy for good health on her upcoming trip.
We also inquired about the rising numbers on Cathy's liver enzymes. Jen referred to a report that 98% of the patients on Kadcyla saw an increase in their AST enzyme and 82% experienced an increase in their ALT enzyme. She then pointed out that Cathy's bilirubin number was normal which reflects good overall function of the liver!! Based on these numbers, Jen concluded that the drug is causing irritation and inflammation in the liver but it continues to function well.
As noted earlier, Cathy and Mike have been blessed with a trip to Colorado and Montana. Lord willing, they will leave on September 19th and return on September 29th.
Please continue to pray for the effectiveness of Kadcyla directly on the cancer cells while minimizing the toxic effects on the rest of Cathy's body. Pray also that Cathy and Mike will be refreshed on their upcoming vacation and that all the planning details will fall into place.
Gratefully,
Lori
"Come let us sing for joy to the lord; let us shout aloud to the Rock of our salvation.
Let us come before him with thanksgiving and extol him with music and song.
For the Lord is a great God , the great King above all gods.
In his hands are the depths of the earth, and the mountain peaks belong to him.
The sea is his for he made it, and his hands formed the dry land.
Come, let us bow down in worship, let us kneel before the Lord our Maker;
for he is our God and we are the people of his pasture,
the flock under his care." Psalm 95: 1 -7
Friday, we met with Jen who was quite patient with all of our questions (Thank you, Lord). We really appreciate the wonderful staff at the Block Center. So join with us on the learning curve of this new drug, Kadcyla, as Cathy received her fifth treatment.
Concerning the blood platelet count, the threshold for Kadcyla is 80,000. Since Cathy's platelets were at 85,000 they administered the normal dose at the usual time of 45 minutes. Now they have a history of the rate that Cathy's body replenishes her platelets. On August 16th they were 71,000 and rose to 85,000 on August 21st. This will be a good reference point.
In questioning the white blood cell count, the Block Center focuses on a white blood cell listed as "Neuts Absolute" on the lab report. This time it was low and Jen strongly suggested that Cathy return to the Neulasta shot. This will boost the "neutrophils" and help her body fight off any infection. Jen also said that Neulasta is Cathy's insurance policy for good health on her upcoming trip.
We also inquired about the rising numbers on Cathy's liver enzymes. Jen referred to a report that 98% of the patients on Kadcyla saw an increase in their AST enzyme and 82% experienced an increase in their ALT enzyme. She then pointed out that Cathy's bilirubin number was normal which reflects good overall function of the liver!! Based on these numbers, Jen concluded that the drug is causing irritation and inflammation in the liver but it continues to function well.
As noted earlier, Cathy and Mike have been blessed with a trip to Colorado and Montana. Lord willing, they will leave on September 19th and return on September 29th.
Please continue to pray for the effectiveness of Kadcyla directly on the cancer cells while minimizing the toxic effects on the rest of Cathy's body. Pray also that Cathy and Mike will be refreshed on their upcoming vacation and that all the planning details will fall into place.
Gratefully,
Lori
"Come let us sing for joy to the lord; let us shout aloud to the Rock of our salvation.
Let us come before him with thanksgiving and extol him with music and song.
For the Lord is a great God , the great King above all gods.
In his hands are the depths of the earth, and the mountain peaks belong to him.
The sea is his for he made it, and his hands formed the dry land.
Come, let us bow down in worship, let us kneel before the Lord our Maker;
for he is our God and we are the people of his pasture,
the flock under his care." Psalm 95: 1 -7
Tuesday, August 20, 2013
Thrombocytopenia!
Yes, that is our word for today - thrombocytopenia. This means that Cathy has a low blood platelet count which has delayed our trip to the Block Center. She originally thought it was low white blood cells but they are fine, which is good news because she will not need the Neulasta shot in the future.
We normally have 150,000 to 450,000 platelets per milliliter of blood. Last Friday when Cathy had her blood drawn it was at 71,000. She waited 72 hours and repeated the test. Yesterday, it had only increased to 79,000. Our platelets live for ten days, the body continually renews the supply by producing new ones in the bone marrow. Per the Block Center, there is little that Cathy can do except wait.
The Block Center has rescheduled her appointment for Friday, August 23rd. They will run another blood test the day before. Please pray for restoration of her platelets and, if necessary, direction for a new treatment plan.
Gratefully,
Lori
We normally have 150,000 to 450,000 platelets per milliliter of blood. Last Friday when Cathy had her blood drawn it was at 71,000. She waited 72 hours and repeated the test. Yesterday, it had only increased to 79,000. Our platelets live for ten days, the body continually renews the supply by producing new ones in the bone marrow. Per the Block Center, there is little that Cathy can do except wait.
The Block Center has rescheduled her appointment for Friday, August 23rd. They will run another blood test the day before. Please pray for restoration of her platelets and, if necessary, direction for a new treatment plan.
Gratefully,
Lori
Wednesday, August 14, 2013
Wastelands
Author: Elisabeth Elliot
There are dry, fruitless, lonely places in each of our
lives, where we seem to travel alone, sometimes feeling as though we must
surely have lost the way. What am I doing here? How did this happen? Lord, get
me out of this!
He does not get us out. Not when we ask for it, at any
rate, because it was He all along who brought us to this place. He has been
here before--it is no wilderness to Him, and He walks with us. There are things
to be seen and learned in these apparent wastelands which cannot be seen and
learned in the "city"--in places of comfort, convenience, and
company.
God does not intend to make it no wasteland. He intends
rather to keep us--to hold us with his strength, to sustain us with his sure
words--in a place where there is nothing else we can count on.
"God did not guide them by the road towards the Philistines,
although that was the shortest...God made them go round by way of the
wilderness towards the Red Sea" (Ex 13:17,18 NEB).
Imagine what Israel and all of us who worship Israel's
God would have missed if they had gone by the short route--the thrilling story
of the deliverance from Egypt's chariots when the sea was rolled back. Let's
not ask for shortcuts. Let's keep alert for the wonders our Guide will show us
in the wilderness.
Wednesday, July 31, 2013
27th Treatment at the Block Center
Today Cathy met with Dr Udhrain. The CT Scan and the Nuclear Bone Scan show there is nothing new and the cancer has not grown.A stable disease is still a good sign. He said that Kadcyla could have delayed effects and that a "targeted therapy" may take longer. The tumor markers are still a little bit elevated, but this could also reflect that the tumors are dying? After 2 more treatments he will repeat the tumor marker test.
Due to Cathy's foot swelling at the last treatment, they slowed this I.V. drip down to 45 minutes and increased the Decadron. However, she did have swelling on the trip home beginning at 4 pm.
Since this is a targeted therapy, Dr Udhrain, agreed to Cathy's request to hold off on taking the Neulasta shot. He did warn her that it could delay her next treatment if the blood counts go to low.
Gratefully,
Lori
Due to Cathy's foot swelling at the last treatment, they slowed this I.V. drip down to 45 minutes and increased the Decadron. However, she did have swelling on the trip home beginning at 4 pm.
Since this is a targeted therapy, Dr Udhrain, agreed to Cathy's request to hold off on taking the Neulasta shot. He did warn her that it could delay her next treatment if the blood counts go to low.
Gratefully,
Lori
Wednesday, July 24, 2013
Sunday, July 21, 2013
Tests
Scheduled for Tuesday, July 23, I will be having a CT, a bone scan, and bone densitometry (for osteopenia). I always get a little anxious about these--ignorance is bliss?--NOT. This is one way we can try to stay on top of matters. To know exactly what is going on inside informs us as to whether or not the new drug, Kadcyla, is working. Of course, I'm praying to be greatly encouraged that things are moving in a positive direction; however, if not, then we would want to change our present course of action.
Do not be anxious about anything, but in everything, by prayers and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus. Philippians 4:6-7
Do not be anxious about anything, but in everything, by prayers and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus. Philippians 4:6-7
Tuesday, July 16, 2013
A Final Word by Charles Stanley
from his book How to Handle Adversity
"Suffering is unavoidable. It comes without warning; it takes us by surprise. It can shatter or strengthen us. It can be the source of great bitterness or abounding joy. It can be the means by which our faith is destroyed. Or it can be the tool through which our faith is deepened. The outcome hinges not on the nature or source of our adversity, but on the character and spirit of our response. Our response to adversity will for the most part by determined by our reason for living, our purpose for being on this earth, as we see it."
Next week I am to have a CT scan done. This type test always makes me a bit apprehensive. Please, intercede for me that I would remain calm, especially for the interim time between the test and my next Block Center appoint, which is scheduled for the 30th.
"Suffering is unavoidable. It comes without warning; it takes us by surprise. It can shatter or strengthen us. It can be the source of great bitterness or abounding joy. It can be the means by which our faith is destroyed. Or it can be the tool through which our faith is deepened. The outcome hinges not on the nature or source of our adversity, but on the character and spirit of our response. Our response to adversity will for the most part by determined by our reason for living, our purpose for being on this earth, as we see it."
Next week I am to have a CT scan done. This type test always makes me a bit apprehensive. Please, intercede for me that I would remain calm, especially for the interim time between the test and my next Block Center appoint, which is scheduled for the 30th.
Wednesday, July 10, 2013
26th Treatment at the Block Center
Not only did God provide safe travel, but we also managed to "skirt" all the rain storms in the area on our trip to Chicago.
For the past three visits, Cathy's port has been troublesome. While they have been able to infuse the medications, they were unable to draw blood for lab tests. Mercifully, that changed on this trip. We were so happy to see her blood flow when they drew it for a tumor marker test!! This saved her a trip to the hospital where her port was installed. Please pray that the problem has been finally resolved.
Since Cathy has discontinued the hormone therapy it has allowed her body to resume a healthier weight - that, along with due diligence concerning her diet. This was a pleasant surprise.
The Block Center has requested another CT Scan in 2 weeks. Gratefully, this will help track the progress of the new drug Kadcyla. Please pray for the radiologist who will read this scan that he will note all the information needed to make a wise decision about continuing this treatment.
Cathy also received the results from her quarterly Nutritional Lab Panel. This is a 19 page, detailed report on her levels of antioxidants, inflammation, circulation, glycemia and immune panels. Ginger, the dietitian, used words like; fantastic, stable, good and perfect The inflammation panel did reflect the tissue growth in her liver by rising just a little. They have made a few changes in her daily supplement regiment.
One "quirky" side effect happened while they were infusing the Kadcyla. Cathy noticed that her right foot and ankle was swelling. They immediately stopped the I.V. and gave Cathy a steroid. Within 5 to 10 minutes her foot was back to normal and they resumed administering the final five minutes of the Kadcyla. On our trip home she did notice that it was beginning to swell again so we ask that you keep this in prayer.
Overall, this was a positive visit. Please remember that Cathy will be exhausted for 5 to 7 days after treatment and pray for her energy levels. She also continues to experience a dry mouth which interrupts her ability to sleep and feel rested.
I would like to personally note that Cathy gives encouragement to staff, family and patients while at the Block Center. I'm thankful for the indwelling of the Holy Spirit and pray that she will always have the right words for all she encounters during this journey in life.
Lori
For the past three visits, Cathy's port has been troublesome. While they have been able to infuse the medications, they were unable to draw blood for lab tests. Mercifully, that changed on this trip. We were so happy to see her blood flow when they drew it for a tumor marker test!! This saved her a trip to the hospital where her port was installed. Please pray that the problem has been finally resolved.
Since Cathy has discontinued the hormone therapy it has allowed her body to resume a healthier weight - that, along with due diligence concerning her diet. This was a pleasant surprise.
The Block Center has requested another CT Scan in 2 weeks. Gratefully, this will help track the progress of the new drug Kadcyla. Please pray for the radiologist who will read this scan that he will note all the information needed to make a wise decision about continuing this treatment.
Cathy also received the results from her quarterly Nutritional Lab Panel. This is a 19 page, detailed report on her levels of antioxidants, inflammation, circulation, glycemia and immune panels. Ginger, the dietitian, used words like; fantastic, stable, good and perfect The inflammation panel did reflect the tissue growth in her liver by rising just a little. They have made a few changes in her daily supplement regiment.
One "quirky" side effect happened while they were infusing the Kadcyla. Cathy noticed that her right foot and ankle was swelling. They immediately stopped the I.V. and gave Cathy a steroid. Within 5 to 10 minutes her foot was back to normal and they resumed administering the final five minutes of the Kadcyla. On our trip home she did notice that it was beginning to swell again so we ask that you keep this in prayer.
Overall, this was a positive visit. Please remember that Cathy will be exhausted for 5 to 7 days after treatment and pray for her energy levels. She also continues to experience a dry mouth which interrupts her ability to sleep and feel rested.
I would like to personally note that Cathy gives encouragement to staff, family and patients while at the Block Center. I'm thankful for the indwelling of the Holy Spirit and pray that she will always have the right words for all she encounters during this journey in life.
Lori
Tuesday, July 2, 2013
Recently, a friend recommended to me Charles Stanley's How to Handle Adversity. I have found the reading to be most encouraging and desired to share with others going through their own experiences of adversity, that the book may be helpful in providing a fresh perspective during those times.
"Through all the pain and adversity God may allow us to face, two things are always true. First, He is sensitive to what we are feeling: "For we do not have a high priest who cannot sympathize with our weaknesses." --Hebrews 4:15
Second, whatever He is in the process of accomplishing through our suffering will always be for our best interest."
"God is in the process of engineering circumstances through which He can reveal Himself to each of us. And both history as well as our personal testimonies bear witness to the fact that it is in times of adversity that we come to a greater realization of God's incredible faithfulness to us."
We are honed and shaped into Christ' likeness by sharing in His suffering. Fun? No! Worth it? Yes!
Remembering all of you in prayer--for sharing in my present trouble.
~Cath~
Tuesday, June 25, 2013
How to do the Job You Don't Really Want To Do
Author: Elisabeth Elliot
The job has been given to me to do.
Therefore it is a gift.
Therefore it is a privilege.
Therefore it is an offering I may make to God.
Therefore it is to be done gladly, if it is done for Him.
Therefore it is the route to sanctity.
Therefore it is a gift.
Therefore it is a privilege.
Therefore it is an offering I may make to God.
Therefore it is to be done gladly, if it is done for Him.
Therefore it is the route to sanctity.
Here, not somewhere else, I may learn God's way. In this
job, not in some other, God looks for faithfulness. The discipline of this job
is, in fact, the chisel God has chosen to shape me with--into the image of
Christ.
Thank you, Lord, for the work You have assigned me. I
take it as your gift; I offer it back to you. With your help I will do it
gladly, faithfully, and I will trust You to make me holy."
Please join Cathy in praising God that the side effects from the new treatment are relatively mild. For the first week after the treatment she experiences a lack of energy and some mild digestion issues but these both seem to have cleared up. One persistent side effect is a dry mouth which interrupts her sleep as she needs to drink water every hour. Continue to pray that the Kadcyla will destroy all the cancer cells in her body.
Wednesday, June 19, 2013
25th Treatment at the Block Center
Actual drive time, this Tuesday, was our longest--4 1/4 hours each way. Not such a negative thing as it gave my hubby and I more alone time. Though I wasn't much good company on the way home--slept lots; which is actually a good thing, since it pleases my A Team. I want to stay on their good side. :)
A massive cloud of fog covered most of the Windy City on our way up. Visibility was perhaps a half mile. I mention this because it's never happened to me before and it was strange driving through it, especially over the bridge. The sun broke through within 2-3 hours leaving a beautiful blue sky with wispy white clouds.
We chose the Japanese Chestnut room this time, window side (love the sunshine). After Nurse Lindsey took my vitals (which were good), we spent some Q&A time with Jacki, the nutritionist. Maria, one of my A Team members, is assisting me in "getting firmly back in the saddle" with my diet. The focus for me right now is at least 50% raw vegetables/50% steamed; my scrumptious kale/spinach smoothies w/two powdered supplements + one liquid supplement, 1/4 c. blueberries and 3-4 1" slices of frozen banana, as well, 1 Tbsp ground flax seed and wheat germ each. Cold water salmon is permitted, beans, and mana or Ezekiel bread. This may not sound like much, but rest assured that everything is absolutely delicious, and full of all the life sustaining properties a body would need for disease prevention or restoration.
Next was our conversation with the PA, Jen, Other than a random minor nose bleed (#3 on scale of 0-5) from right side (this occurred over a period of about 6 days) no real side effects, which is a huge praise. I actually had more issues w/the bike fall. Anyway, she showed me the proper technique to use should I have to deal with it again. Twenty-three percent of patients have issue with bloody noses. When inquired as to whether or not hair loss would be a side effect of Kadcyla (pronounce: kad(soft c)(long i)luh), she had to look that one up for us--it is NOT a side effect, which is great!
Finished w/Jen, the nurse returned to extract 15 vials of blood for my nutritional panel. Unfortunately, she
could flush the port but when trying to extract there must be tissue that closes the hole. This meant the phlebotomist would have to do it from the arm. Note that I've been up since 4:30a.m. Okay-so I'm sitting there watching him--kind of--and at vial #5 I'm feeling a little tired and warm, desiring to lay my head down.
Which I did. Not long after, I lifted my head and began counting the remaining empty vials, praying that this process could go much quicker. By the time he completed the 12th vial I laid my head down for good. He asked me if I was okay, to which I replied no, with the shake of my head. This old lady was going down for the count. He yells out for help; I could hear everyone buzzing around me but could offer no response. They somehow lowered my dead weight into a wheel chair, giving me smelling salts (gross--smells nothing like salt) and navigated me into a really nice cool room, propped my feet up and placed wet toweling around my neck. I have no idea how much time had passed since blacking out. The last time this happened to me was after my home-birthed (now)17 year old Noah (I remember that time being much scarier). I'm assuming the phlebotomist got all my blood he needed.
Back in my cubicle I reclined with a blanket and pillow to rest. Dozing in and out, then Mike came to tell me Eric (a former Block nutritionist who was visiting for the day) had begun his lunch demonstration. Under more normal circumstances, I would have been one of the first patients downstairs to watch. Too tuckered out, I opted to have Michael bring me lunch when prepared. The menu: no-egg salad sandwiches, lemon balsamic strawberries, salad greens w/green onions and shredded carrots, and potato salad. People, let me tell you, we couldn't have picked a better day for treatment. This food was absolutely fantastic. The potato salad recipe was submitted from one of Block's cancer survivors. The best part? You couldn't even tell this food was beneficially healthful!
Forever indebted to all of you walking this journey with us and the family.
I consider all of you my extended A Team members. :)
Cathy
A massive cloud of fog covered most of the Windy City on our way up. Visibility was perhaps a half mile. I mention this because it's never happened to me before and it was strange driving through it, especially over the bridge. The sun broke through within 2-3 hours leaving a beautiful blue sky with wispy white clouds.
We chose the Japanese Chestnut room this time, window side (love the sunshine). After Nurse Lindsey took my vitals (which were good), we spent some Q&A time with Jacki, the nutritionist. Maria, one of my A Team members, is assisting me in "getting firmly back in the saddle" with my diet. The focus for me right now is at least 50% raw vegetables/50% steamed; my scrumptious kale/spinach smoothies w/two powdered supplements + one liquid supplement, 1/4 c. blueberries and 3-4 1" slices of frozen banana, as well, 1 Tbsp ground flax seed and wheat germ each. Cold water salmon is permitted, beans, and mana or Ezekiel bread. This may not sound like much, but rest assured that everything is absolutely delicious, and full of all the life sustaining properties a body would need for disease prevention or restoration.
Next was our conversation with the PA, Jen, Other than a random minor nose bleed (#3 on scale of 0-5) from right side (this occurred over a period of about 6 days) no real side effects, which is a huge praise. I actually had more issues w/the bike fall. Anyway, she showed me the proper technique to use should I have to deal with it again. Twenty-three percent of patients have issue with bloody noses. When inquired as to whether or not hair loss would be a side effect of Kadcyla (pronounce: kad(soft c)(long i)luh), she had to look that one up for us--it is NOT a side effect, which is great!
Finished w/Jen, the nurse returned to extract 15 vials of blood for my nutritional panel. Unfortunately, she
could flush the port but when trying to extract there must be tissue that closes the hole. This meant the phlebotomist would have to do it from the arm. Note that I've been up since 4:30a.m. Okay-so I'm sitting there watching him--kind of--and at vial #5 I'm feeling a little tired and warm, desiring to lay my head down.
Which I did. Not long after, I lifted my head and began counting the remaining empty vials, praying that this process could go much quicker. By the time he completed the 12th vial I laid my head down for good. He asked me if I was okay, to which I replied no, with the shake of my head. This old lady was going down for the count. He yells out for help; I could hear everyone buzzing around me but could offer no response. They somehow lowered my dead weight into a wheel chair, giving me smelling salts (gross--smells nothing like salt) and navigated me into a really nice cool room, propped my feet up and placed wet toweling around my neck. I have no idea how much time had passed since blacking out. The last time this happened to me was after my home-birthed (now)17 year old Noah (I remember that time being much scarier). I'm assuming the phlebotomist got all my blood he needed.
Back in my cubicle I reclined with a blanket and pillow to rest. Dozing in and out, then Mike came to tell me Eric (a former Block nutritionist who was visiting for the day) had begun his lunch demonstration. Under more normal circumstances, I would have been one of the first patients downstairs to watch. Too tuckered out, I opted to have Michael bring me lunch when prepared. The menu: no-egg salad sandwiches, lemon balsamic strawberries, salad greens w/green onions and shredded carrots, and potato salad. People, let me tell you, we couldn't have picked a better day for treatment. This food was absolutely fantastic. The potato salad recipe was submitted from one of Block's cancer survivors. The best part? You couldn't even tell this food was beneficially healthful!
Forever indebted to all of you walking this journey with us and the family.
I consider all of you my extended A Team members. :)
Cathy
Tuesday, June 11, 2013
Glutton for Punishment
As if having to fight cancer isn't enough of a challenge, two days following my last treatment I decided to take a fall on my bike at the great speed of negative .5 mph. The bike lay itself down to the left as my body slammed the ground to the right. After my 10 year old helped her old ma up, and a kind neighbor lent his strength to put my rear brake pad back in place, the two of us rode home. Nary a scratch or bruise, just a bump on the shin. No problem.
Quite a different story by the next morning. My body hurt from the neck down and I began having back
spasms, which did wane by Sunday afternoon. Feeling much improved by Monday, though bruises started appearing on my legs, especially the left. Being that I have such lovely appendages anyway, the boo-boos created an even prettier sight.
Much improved as each day passes; however, I've yet to venture out on my bike.
Quite a different story by the next morning. My body hurt from the neck down and I began having back
spasms, which did wane by Sunday afternoon. Feeling much improved by Monday, though bruises started appearing on my legs, especially the left. Being that I have such lovely appendages anyway, the boo-boos created an even prettier sight.
Much improved as each day passes; however, I've yet to venture out on my bike.
Wednesday, May 29, 2013
24th Treatment at the Block Center
It was another beautiful spring day with sunshine, green trees and crops growing in the fields. Mike drove us to Chicago as we were scheduled to hear Cathy's quarterly tests results.
According to Dr Block, Cathy's echocardiogram and bone scans were fine, along with her routine blood work. However, her CT Scan "reveals a subtle change moving in the wrong direction." There are several small hypodense nodules in the right lobe of her liver. Some were barely discernible on the previous scan in February but now they have grown. To quote from the report, "there has been a progression of left and right lobe hepatic metastatic disease compared with 2/01/2013."
Her tumor markers have also increased. In October her CA 27.29 was 64.6 now it is 269.3 and her
CA 15.3 was 50.3 now it is 283.4. (These numbers were originally at 7,748.7 and 7,153.0 respectively when Cathy first started treatment in January 2012.)
Dr Block has recommended a new drug therapy called Kadcyla. It combines Herceptin and a chemotherapy drug (DM1) that interferes with cancer cell growth. Kadcyla delivers Herceptin and DM1 directly to HER-2 positive cells and limits exposure of the rest of the body to the chemotherapy. This drug just became available on February 22, 2013. Cathy is the first patient to receive it at the Block Center. They began this new treatment today.
In addition, she will once again take Neulasta to maintain her blood cell count. This drug previously caused her side effects. Cathy has also discontinued the hormone therapy of Lupron and Femora.
Dr Block compared this to changing ball players during the early innings. Cathy accepted this news with grace and a determination to stay in the fight. Please pray that this new drug would deliver the "knock out punch" against her cancer cells and that she would not suffer from any serious side effects. Pray also for Cathy, Mike and their children as they make adjustments to this new course of action.
If you have any questions please call me at 459-0254.
Gratefully,
Lori
According to Dr Block, Cathy's echocardiogram and bone scans were fine, along with her routine blood work. However, her CT Scan "reveals a subtle change moving in the wrong direction." There are several small hypodense nodules in the right lobe of her liver. Some were barely discernible on the previous scan in February but now they have grown. To quote from the report, "there has been a progression of left and right lobe hepatic metastatic disease compared with 2/01/2013."
Her tumor markers have also increased. In October her CA 27.29 was 64.6 now it is 269.3 and her
CA 15.3 was 50.3 now it is 283.4. (These numbers were originally at 7,748.7 and 7,153.0 respectively when Cathy first started treatment in January 2012.)
Dr Block has recommended a new drug therapy called Kadcyla. It combines Herceptin and a chemotherapy drug (DM1) that interferes with cancer cell growth. Kadcyla delivers Herceptin and DM1 directly to HER-2 positive cells and limits exposure of the rest of the body to the chemotherapy. This drug just became available on February 22, 2013. Cathy is the first patient to receive it at the Block Center. They began this new treatment today.
In addition, she will once again take Neulasta to maintain her blood cell count. This drug previously caused her side effects. Cathy has also discontinued the hormone therapy of Lupron and Femora.
Dr Block compared this to changing ball players during the early innings. Cathy accepted this news with grace and a determination to stay in the fight. Please pray that this new drug would deliver the "knock out punch" against her cancer cells and that she would not suffer from any serious side effects. Pray also for Cathy, Mike and their children as they make adjustments to this new course of action.
If you have any questions please call me at 459-0254.
Gratefully,
Lori
Saturday, May 25, 2013
A very tiring day of testing, yesterday, simply due to the time involved squeezing them into one day. My routine blood draw that must be done prior to each trip up, was good; so we are on for the trip to Block scheduled the 29th. Completed a bone scan, a CT (thorax, abdomen, and pelvic), and, finally, an echo cardiogram. All of these tests are routine and results would give us an indication of whether or not a change in course of action would be warranted. Of course, once again, hoping to receive good news in regards to the results, which should be available for discussion during next week's treatment.
May all of you have a safe holiday.
~Cathy~
May all of you have a safe holiday.
~Cathy~
Heavenly Father,
As we remember those who have made the ultimate sacrifice for the freedoms we enjoy every day, we think of how they have followed in the footsteps of your son, our Savior, Jesus Christ. Please hold our servicemen and women in your strong arms. Cover them with your sheltering grace and your presence as they stand in the gap for our protection.
We also remember the families of our troops. We ask for your unique blessings to fill their homes, and we pray your peace, provision, and strength will fill their lives.
May the members of our armed forces be supplied with courage to face each day and may they trust in the Lord's mighty power to accomplish each task. Let our military brothers and sisters feel our love and support.
(Mary Fairchild)
We also remember the families of our troops. We ask for your unique blessings to fill their homes, and we pray your peace, provision, and strength will fill their lives.
May the members of our armed forces be supplied with courage to face each day and may they trust in the Lord's mighty power to accomplish each task. Let our military brothers and sisters feel our love and support.
(Mary Fairchild)
Wednesday, May 15, 2013
I love spring! It is so fun watching the grass grow green and the flowers pop up and bloom..... Fully appreciate the warmer temps, too, which afford for pleasanter walking and bike riding. My Block team prefers I walk, but until I get my feet issue taken care of I lean towards the biking. I hope that all of you are taking time to enjoy the beauty of this season of new life, as well.
What follows is a quote from Ranald Macaulay & Jerram Barrs from their book Being Human. A sore reminder of my lacking.
If someone is engaged to be married, the engagement must be followed by a growing relationship and the consummation of marriage, otherwise the engagement is null and void. So for the Christian, commitment to Christ must be followed and evidenced by a turning to him day by day, serving, loving and obeying him. The everyday life of faith, then, is of eternal consequence.
Lord Jesus, please help me in my daily commitment to honor you in thought, word, and action.
What follows is a quote from Ranald Macaulay & Jerram Barrs from their book Being Human. A sore reminder of my lacking.
If someone is engaged to be married, the engagement must be followed by a growing relationship and the consummation of marriage, otherwise the engagement is null and void. So for the Christian, commitment to Christ must be followed and evidenced by a turning to him day by day, serving, loving and obeying him. The everyday life of faith, then, is of eternal consequence.
Lord Jesus, please help me in my daily commitment to honor you in thought, word, and action.
Thursday, May 9, 2013
23rd Treatment at the Block Center
We left Fort Wayne with the sun shining, flowers blooming and birds chirping!
"Because of the Lord's great love we are not consumed,
for his compassions never fail.
They are new every morning
great is your faithfulness." Lev 23:22-23
This is Cathy's 23rd treatment in Chicago. For the past 11 months she has been undergoing hormone therapy along with a proper diet and good supplements.
My goal on this trip was to assess Cathy's side effects from head to toe as she is considering the drug, Prolia, to combat osteoporosis and needs to take some ibuprofen for aches and pain.
With this information in hand, we met with Jen at the Block Center. One of the drugs that Cathy is taking is Arimidex. This class of drugs, known as non-steroidal aromatase inhibitors, prevents the conversion of androgen to estrogen within the body. Jen recommended switching to Femora which is in the same class. Women usually respond with less side effects when they make this change. It may take 2 months before Cathy notices a difference. During that time, Cathy will have the results from her quarterly tests which are: CT scan, tumor markers, echocardiogram, nutritional lab panel and dexa bone scan. Once all this information is gathered and her body has adjusted to the new drug, Cathy will be more prepared with the decision to "stay the course" or consider a different treatment plan.
Please keep Cathy, Mike and the staff at the Block Center in your prayers that God will guide them in wisdom to provide the most effective strategy to battle Cathy's cancer.
I would also ask for your prayers to find a local doctor who will provide the Block Center's protocol for high dosage vitamin C infusions (ascorbic acid and its salts.) It needs to be administered 2 or 3 times per week through Cathy's port. Pray also that her insurance will cover this expense. If you are interested in the research behind this treatment I can provide that information from the Wichita State University.
That concludes my notes on this trip. We are so grateful for you support and encouragement. If you have any questions, I can be reached at home 260-459-0254.
Gratefully,
Lori
"Because of the Lord's great love we are not consumed,
for his compassions never fail.
They are new every morning
great is your faithfulness." Lev 23:22-23
This is Cathy's 23rd treatment in Chicago. For the past 11 months she has been undergoing hormone therapy along with a proper diet and good supplements.
My goal on this trip was to assess Cathy's side effects from head to toe as she is considering the drug, Prolia, to combat osteoporosis and needs to take some ibuprofen for aches and pain.
With this information in hand, we met with Jen at the Block Center. One of the drugs that Cathy is taking is Arimidex. This class of drugs, known as non-steroidal aromatase inhibitors, prevents the conversion of androgen to estrogen within the body. Jen recommended switching to Femora which is in the same class. Women usually respond with less side effects when they make this change. It may take 2 months before Cathy notices a difference. During that time, Cathy will have the results from her quarterly tests which are: CT scan, tumor markers, echocardiogram, nutritional lab panel and dexa bone scan. Once all this information is gathered and her body has adjusted to the new drug, Cathy will be more prepared with the decision to "stay the course" or consider a different treatment plan.
Please keep Cathy, Mike and the staff at the Block Center in your prayers that God will guide them in wisdom to provide the most effective strategy to battle Cathy's cancer.
I would also ask for your prayers to find a local doctor who will provide the Block Center's protocol for high dosage vitamin C infusions (ascorbic acid and its salts.) It needs to be administered 2 or 3 times per week through Cathy's port. Pray also that her insurance will cover this expense. If you are interested in the research behind this treatment I can provide that information from the Wichita State University.
That concludes my notes on this trip. We are so grateful for you support and encouragement. If you have any questions, I can be reached at home 260-459-0254.
Gratefully,
Lori
Thursday, April 18, 2013
TREATMENT #22
Michael and Bekah (10 yrs old) made the trip up with me this time. Thankful the rain held off until we arrived at the Block Center. After checking in, we established ourselves in the "Cherry" cubicle--Bekah's choice. These areas that the patients settle into are named after trees and have really cool art hanging on the wall that corresponds to each name.
Nurse Lindsey, new to the Center a couple of weeks now, took my vitals, which were all good. I was thrilled to have weighed in one pound less. Weight gain is a terrible, terrible side effect of shutting down estrogen. Of course, the single pound I lost must have been in a big toe--last summer's clothing still snug! (patience has never been my strong suit) Seriously, I will feel much better if I can drop the 8# wt. gain.
I do have feet pain, somewhat (perhaps from the weight gain?). Actually hoping this to be a minor orthopedic issue. Walking is a very important component of my restoration to health.
Mike and I will need to make a decision as to whether or not I go on Prolia. This is a drug that would be administered subcutaneously, every 6 mo., during one of my visits to the Block Center. My oncologist recommends this to prevent osteoporosis. A residual benefit may be against the cancer, though not scientifically proven at this point.
I will have either a PET or CT scan in the near future. We would like to see the actual tumors, if any still exist. It could change our mode of attack. Also, end of May, beginning of June, I will have another nutritional panel (at least 15 vials of blood are taken for this test).
Okay, so while I'm sitting there reading waiting for my Vitamin IV to run through, Dr. Udhrain, my oncologist, walks in to take time to greet Mike and I, and meet Rebekah. And guess what A Team? I got a hug!!!! :)
By 1:00 Chicago time, we left Block and stopped by one of the Whole Foods for lunch and some minor shopping. One of the nurse's told me Chicagoans, for whatever reason, have trouble driving in rain. She must be right because it took us MUCH longer to get out of the city.
In love and appreciation for all of you,
Cathy
Thursday, April 4, 2013
21st TREATMENT AT THE BLOCK CENTER
My apology for taking so long in posting this. Overall, the 28th was pretty eventless as far as my appointment is concerned. This trip's threesome included: myself, Suze--designated driver who managed to breeze through the traffic (always a plus) there, and back, and Maria. Thank you, ladies, for such pleasant company and meaningful conversation. And thank you, Lord, for the beautiful sunshine and safe travels.
Vitals were good. No tests done recently, so nothing to report there.
Met w/Jen, the PA. Discussed the possibility of going on Prolia, to protect against osteoporosis (I currently have osteopenia) and fractures. The drug helps lay down new bone formation and strengthens the bone. The Prolia would be administered as an injection subcutaneously once every 6 months. The two major side effects include: low blood calcium levels, and osteoneucrosis of the jaw. There are several common side effects including bladder infections, muscle aches and pains (supposedly for just a couple of days after the shot), and at risk for high cholesterol. This list of side effects is not exhaustive. So, who wants even MORE side effects? We'll have to pray for wisdom about this one.
In the near future, a PET will be done to show us the activity level of tumors. So far, everything shows us moving in the right direction; we're (Mike and I) are just curious to know exactly what it looks like we are dealing with at this point.
My gratitude to all of you who take the time to keep up w/the blog; and, most importantly, your consistent prayers on behalf of my health.
Vitals were good. No tests done recently, so nothing to report there.
Met w/Jen, the PA. Discussed the possibility of going on Prolia, to protect against osteoporosis (I currently have osteopenia) and fractures. The drug helps lay down new bone formation and strengthens the bone. The Prolia would be administered as an injection subcutaneously once every 6 months. The two major side effects include: low blood calcium levels, and osteoneucrosis of the jaw. There are several common side effects including bladder infections, muscle aches and pains (supposedly for just a couple of days after the shot), and at risk for high cholesterol. This list of side effects is not exhaustive. So, who wants even MORE side effects? We'll have to pray for wisdom about this one.
In the near future, a PET will be done to show us the activity level of tumors. So far, everything shows us moving in the right direction; we're (Mike and I) are just curious to know exactly what it looks like we are dealing with at this point.
My gratitude to all of you who take the time to keep up w/the blog; and, most importantly, your consistent prayers on behalf of my health.
Sunday, March 31, 2013
Friday, March 29, 2013
GOOD FRIDAY
Surely he took up our pain and bore our suffering,
yet we considered him punished by God, stricken by him, and afflicted.
But he was pierced for our transgressions, he was crushed for our iniquities;
the punishment that brought us peace was on him, and by his wounds we are healed.
Isaiah 53:4-5
Monday, March 11, 2013
20th Treatment at the Block Center
Not only did we have a very short trip to Chicago, this will probably be my shortest blog. To begin with, the original date for treatment was Tuesday, March 5th, due to 10.5 inches of snow we decided to reschedule and went on a sunny Friday. What a difference!
Cathy met with Dr. Udhrian. Vital signs and blood work all continue to be within acceptable ranges. He reviewed the recent echocardiogram and bone scan - everything looks good! Cathy, with all her wit and humor set upon this new, unsuspecting doctor with a hilarious question. Then she laughed herself speechless. I'm sure he will be more "wary" next time.
We had such a good trip, how can that even be possible with stage IV cancer? Of course we know the answer, God provides! I want to thank Cathy and Suzanne for such an enjoyable day.
Gratefully,
Lori
A cheerful heart is good medicine, but a crushed spirit dries up the bones. Proverbs 17:22
Cathy met with Dr. Udhrian. Vital signs and blood work all continue to be within acceptable ranges. He reviewed the recent echocardiogram and bone scan - everything looks good! Cathy, with all her wit and humor set upon this new, unsuspecting doctor with a hilarious question. Then she laughed herself speechless. I'm sure he will be more "wary" next time.
We had such a good trip, how can that even be possible with stage IV cancer? Of course we know the answer, God provides! I want to thank Cathy and Suzanne for such an enjoyable day.
Gratefully,
Lori
A cheerful heart is good medicine, but a crushed spirit dries up the bones. Proverbs 17:22
Friday, March 1, 2013
MARCH----In Like A "Lamb"
Jane Catherine Guntle
Born 3/1/2013 at 11:28/29 a.m.
She's beautiful!
7.72 lb., 20" long, a good head of dark hair
Guess I've lost my touch, however, because when I passed her off to Grandpa she immediately stopped fussing and stared at him. Of course, when he handed her back, she commenced her fussing. :(
Born 3/1/2013 at 11:28/29 a.m.
She's beautiful!
7.72 lb., 20" long, a good head of dark hair
Guess I've lost my touch, however, because when I passed her off to Grandpa she immediately stopped fussing and stared at him. Of course, when he handed her back, she commenced her fussing. :(
Thursday, February 21, 2013
Good News!
Results from two tests conducted this past Tuesday are in. Per Jen, the PA at Block, the echo cardiogram looks great, and the bone scan shows no cancer.
Friday, February 15, 2013
Grateful for the Small Things In Life
It dawned on me this morning that after months of soreness and bleeding I no longer have trouble w/a split up inside my left nostril. I can hear my 20 year old exclaiming, "Oh, mom, how gross! Why ever in the world would you choose to share that bit of information?" To which I would reply that, truly, it is often the littlest things in life that matter greatly. It was the "thorn in my side" for a very long time.
“A sensible thanksgiving for mercies received is a mighty prayer in the Spirit of God. It prevails with Him unspeakably.” ~ John Bunyan
“A sensible thanksgiving for mercies received is a mighty prayer in the Spirit of God. It prevails with Him unspeakably.” ~ John Bunyan
Wednesday, February 13, 2013
19th Treatment at the Block Center
Cathy met the new oncologist, Dr. Ashish Udhrain. He hails from New Orleans with all the southern charm and good manners. He studied at Mayo Clinic and recently joined the Block Center.
So, let's get right to the latest CT Scan, I quote, "mildly improved to stable changes in the liver when compared to the most recent prior exam on 10/24/12" and "no new suspicious mass." Dr. Udhrain interprets this as "positive news in the right direction" and Cathy will continue with the same treatment plan.
Her vital signs and blood work remain within acceptable ranges. For the first time since coming to the Block Center, Cathy's liver enzymes AST and ALT have fallen within normal ranges.
We also received the latest Nutritional Lab Panel, which is drawn every four months. Since Cathy's neuropathy is improving she will drop her B6 supplement, which is one of four that she takes to combat neuropathy. Within the immune panel, her white blood cells and activated T-cells continue to drop so they added Astragalus pills to help boost her immune system. For bone health, due to the hormone therapy, they also added Ipriflavone. Cathy currently takes 17 different supplements a day.
Finally, our lunch had an African flair. We ate African Tomato Stew, Ginger Carrot Quinoa and Buticha Chickpea Spread - yum! We always have the recipes if you are interested.
Thank you for your love, concern, and prayers for Cathy.
Gratefully,
Lori
So, let's get right to the latest CT Scan, I quote, "mildly improved to stable changes in the liver when compared to the most recent prior exam on 10/24/12" and "no new suspicious mass." Dr. Udhrain interprets this as "positive news in the right direction" and Cathy will continue with the same treatment plan.
Her vital signs and blood work remain within acceptable ranges. For the first time since coming to the Block Center, Cathy's liver enzymes AST and ALT have fallen within normal ranges.
We also received the latest Nutritional Lab Panel, which is drawn every four months. Since Cathy's neuropathy is improving she will drop her B6 supplement, which is one of four that she takes to combat neuropathy. Within the immune panel, her white blood cells and activated T-cells continue to drop so they added Astragalus pills to help boost her immune system. For bone health, due to the hormone therapy, they also added Ipriflavone. Cathy currently takes 17 different supplements a day.
Finally, our lunch had an African flair. We ate African Tomato Stew, Ginger Carrot Quinoa and Buticha Chickpea Spread - yum! We always have the recipes if you are interested.
Thank you for your love, concern, and prayers for Cathy.
Gratefully,
Lori
Monday, February 4, 2013
Okay, so my latest ct scan was last Friday. Now, I'd like to know the results--I think. I confess that after a year of treatment I may becoming weary in the battle and my desire is to be as proactive as I possibly can in restoring my body to health. I can't afford to become sloppy or haphazard in that effort. Please, pray for me, that I would be willing to any/all necessary permanent lifestyle changes.
I am thankful for God allowing this cancer to occur, that I may be spiritually stretched and matured through this minute suffering in Christ.
About a year ago I jotted down on a note card what I know to be true: 1) God is my guide, my teacher, my sustainer--in life and through life; 2) that my desire is to willfully submit to His sovereignty; 3) that He is merciful and gracious, while at the same time holding me accountable to His standard; and, finally, 4) that no matter where my journey ends, God remains sovereign. I am glad my heavenly Father is in control.
I am thankful for God allowing this cancer to occur, that I may be spiritually stretched and matured through this minute suffering in Christ.
About a year ago I jotted down on a note card what I know to be true: 1) God is my guide, my teacher, my sustainer--in life and through life; 2) that my desire is to willfully submit to His sovereignty; 3) that He is merciful and gracious, while at the same time holding me accountable to His standard; and, finally, 4) that no matter where my journey ends, God remains sovereign. I am glad my heavenly Father is in control.
Saturday, January 26, 2013
Friday morning of February 1st, I am scheduled to have a CT of the thorax, abdomen and pelvis. My hope is that this scan would show me in remission. I don't know why I'm always a bit anxious when I go in for these tests, but I am. Please, remember me in prayer for that day, especially. That I would have the peace of the Holy Spirit which surpasses all understanding. God Most High remains Sovereign, and my desire is to accept what He deems is best for my life. Thank you.
Wednesday, January 23, 2013
18th Treatment at the Block Center
During yesterday's trip to the Block Center, Dr. Keith Block met with and examined Cathy. All of her vital signs and blood work continue to be within acceptable ranges. (Such a simple sentence to type - yet we are profoundly grateful to God!)
It was a fascinating study into how his mind works, because, Dr Block thinks out loud! Not only did he cover all the current side effects with Cathy but he also sought to look at the entire picture of her treatment moving forward. Philosophically, Dr Block believes this is why they do so well with patients. Yes, he has a remission protocol in place, however, he also needs to consider the "safety nets." What should happen if her liver stops improving? What should happen if the bone tests reveal something? He shared some of the latest research and blood work available to establish a good baseline as they diligently monitor and treat Cathy's cancer.
I'm sure Cathy felt like her head was spinning from the amount of information that Dr Block was sharing. Please continue to pray that God would direct her treatment plan. Pray for grace to endure the side effects, maintain a proper diet, be diligent in exercise, get beneficial sleep, serve her husband and children and swallow all of those daily supplements.
Also be in prayer for the future of the Block Center as they negotiate the current economy, changes in health care, risings costs of pharmaceuticals and lower reimbursement rates. Pray that God will give them wisdom and that this wonderful medical center will be able to keep it's doors open.
We are also looking ahead at the out of pocket medical expenses for Cathy during 2013. If you would like to help or have any questions, please call me.
One year ago - was our first trip to the Block Center. All praise and glory to God!!
Gratefully, Lori
260-459-0254
It was a fascinating study into how his mind works, because, Dr Block thinks out loud! Not only did he cover all the current side effects with Cathy but he also sought to look at the entire picture of her treatment moving forward. Philosophically, Dr Block believes this is why they do so well with patients. Yes, he has a remission protocol in place, however, he also needs to consider the "safety nets." What should happen if her liver stops improving? What should happen if the bone tests reveal something? He shared some of the latest research and blood work available to establish a good baseline as they diligently monitor and treat Cathy's cancer.
I'm sure Cathy felt like her head was spinning from the amount of information that Dr Block was sharing. Please continue to pray that God would direct her treatment plan. Pray for grace to endure the side effects, maintain a proper diet, be diligent in exercise, get beneficial sleep, serve her husband and children and swallow all of those daily supplements.
Also be in prayer for the future of the Block Center as they negotiate the current economy, changes in health care, risings costs of pharmaceuticals and lower reimbursement rates. Pray that God will give them wisdom and that this wonderful medical center will be able to keep it's doors open.
We are also looking ahead at the out of pocket medical expenses for Cathy during 2013. If you would like to help or have any questions, please call me.
One year ago - was our first trip to the Block Center. All praise and glory to God!!
Gratefully, Lori
260-459-0254
Friday, January 18, 2013
A New Semester
Dear Friends,
Since a new semester has started during this school year, I would like to share an excerpt from a devotion written by Elisabeth Elliot titled "God's Curriculum";
There is a philosophy of secular education which holds that the student ought to be allowed to assemble his own curriculum according to his preferences. Few students have a strong basis for making these choices, not knowing how little they know. Ideas of what they need to learn are not only greatly limited but greatly distorted. What they need is help from those who know more than they do.
Mercifully, God does not leave us to choose our own curriculum. His wisdom is perfect, His knowledge embraces not only all worlds but the individual hearts and minds of each of His loved children. With intimate understanding of our deepest needs and individual capacities, He chooses our curriculum. We need only ask, "Give us this day our daily bread, our daily lessons, our homework."
An angry retort from someone may be just the occasion we need in which we learn not only long-suffering and forgiveness, but meekness and gentleness; fruits not born in us but borne only by the Spirit. As Amy Carmichael wrote, "A cup brimful of sweetness cannot spill even one drop of bitter water, no matter how suddenly jarred."
God's curriculum for all who sincerely want to know Him and do His will, will always include lessons we wish we could skip. But the more we apply ourselves, the more honestly we can say what the psalmist said:
"I, thy servant, will study thy statutes./ Thy instruction is my continual delight;/ I turn to it for counsel./ I will run the course set out in thy commandments,/ for they gladden my heart" (Psalm 119: 23, 24, 32 NEB).
Thank you for visiting Cathy's blog site.
Gratefully, Lori
Since a new semester has started during this school year, I would like to share an excerpt from a devotion written by Elisabeth Elliot titled "God's Curriculum";
There is a philosophy of secular education which holds that the student ought to be allowed to assemble his own curriculum according to his preferences. Few students have a strong basis for making these choices, not knowing how little they know. Ideas of what they need to learn are not only greatly limited but greatly distorted. What they need is help from those who know more than they do.
Mercifully, God does not leave us to choose our own curriculum. His wisdom is perfect, His knowledge embraces not only all worlds but the individual hearts and minds of each of His loved children. With intimate understanding of our deepest needs and individual capacities, He chooses our curriculum. We need only ask, "Give us this day our daily bread, our daily lessons, our homework."
An angry retort from someone may be just the occasion we need in which we learn not only long-suffering and forgiveness, but meekness and gentleness; fruits not born in us but borne only by the Spirit. As Amy Carmichael wrote, "A cup brimful of sweetness cannot spill even one drop of bitter water, no matter how suddenly jarred."
God's curriculum for all who sincerely want to know Him and do His will, will always include lessons we wish we could skip. But the more we apply ourselves, the more honestly we can say what the psalmist said:
"I, thy servant, will study thy statutes./ Thy instruction is my continual delight;/ I turn to it for counsel./ I will run the course set out in thy commandments,/ for they gladden my heart" (Psalm 119: 23, 24, 32 NEB).
Thank you for visiting Cathy's blog site.
Gratefully, Lori
Tuesday, January 8, 2013
17th Treatment at the Block Center
Once again, we drove to Chicago on January 2, 2013. It was a beautiful, crisp morning and the sunrise over the wintry farmland was a sight to behold.
All of Cathy's vital signs continue to be within normal ranges. She may dispute this matter since she has added a couple of pounds in weight gain, but this is one side effect from her ongoing hormone therapy.
The "biggest side effect" that Cathy experiences is overall achiness and stiffness. Jen, at the Block Center attributes this to the drug, Arimidex. Please pray that Cathy will be relieved of these symptoms or given the strength to endure them according to God's good wisdom.
Unless scans show otherwise, Cathy will continue with her Arimidex/Lupron/Herceptin treatment plan.
The traffic was so good and the treatments were so quick that we arrived back in Fort Wayne by 4 pm. That is an all time record for us!
Gratefully, Lori
The day is yours, and yours also the night;
you established the sun and moon.
It was you who set all the boundaries of the earth;
you made both summer and winter. Psalm 74: 16-17
All of Cathy's vital signs continue to be within normal ranges. She may dispute this matter since she has added a couple of pounds in weight gain, but this is one side effect from her ongoing hormone therapy.
The "biggest side effect" that Cathy experiences is overall achiness and stiffness. Jen, at the Block Center attributes this to the drug, Arimidex. Please pray that Cathy will be relieved of these symptoms or given the strength to endure them according to God's good wisdom.
Unless scans show otherwise, Cathy will continue with her Arimidex/Lupron/Herceptin treatment plan.
The traffic was so good and the treatments were so quick that we arrived back in Fort Wayne by 4 pm. That is an all time record for us!
Gratefully, Lori
The day is yours, and yours also the night;
you established the sun and moon.
It was you who set all the boundaries of the earth;
you made both summer and winter. Psalm 74: 16-17
Tuesday, January 1, 2013
Wow! 2013 already. Why is it when we are in the thick of things, the passage of time seems slow? And, yet, when the new year dawns, that same passage of time seems to have happened all too quickly. Not that I'd want to relive the chemo again, mind you.
Words cannot adequately express my gratitude for all the prayers and support offered on my and my
family's behalf in 2012. I head to the Block Center again, tomorrow, for treatment #17.These treatments should continue through May of this year. I continue to feel well. Side effects are simply obnoxious, not debilitating. I'll try to be diligent in keeping the blog current.
"May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit." Romans 15:13
**********************************
For great is the Lord, and greatly to be praised;
he is to be feared above all gods.
For all the gods of the peoples are worthless idols,
but the Lord made the heavens.
Splendor and majesty are before him;
strength and beauty are in his sanctuary.
Words cannot adequately express my gratitude for all the prayers and support offered on my and my
family's behalf in 2012. I head to the Block Center again, tomorrow, for treatment #17.These treatments should continue through May of this year. I continue to feel well. Side effects are simply obnoxious, not debilitating. I'll try to be diligent in keeping the blog current.
"May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit." Romans 15:13
**********************************
Oh sing to the Lord a new song;
sing to the Lord, all the earth!
Sing to the Lord, bless his name;
tell of his salvation from day to day.
Declare his glory among the nations,
his marvelous works among all the peoples!
sing to the Lord, all the earth!
Sing to the Lord, bless his name;
tell of his salvation from day to day.
Declare his glory among the nations,
his marvelous works among all the peoples!
For great is the Lord, and greatly to be praised;
he is to be feared above all gods.
For all the gods of the peoples are worthless idols,
but the Lord made the heavens.
Splendor and majesty are before him;
strength and beauty are in his sanctuary.
Ascribe to the Lord, O families of the peoples,
ascribe to the Lord glory and strength!
Ascribe to the Lord the glory due his name;
bring an offering, and come into his courts!
Worship the Lord in the splendor of holiness;
tremble before him, all the earth!
ascribe to the Lord glory and strength!
Ascribe to the Lord the glory due his name;
bring an offering, and come into his courts!
Worship the Lord in the splendor of holiness;
tremble before him, all the earth!
Say among the nations, “The Lord reigns!
Yes, the world is established; it shall never be moved;
he will judge the peoples with equity.”
Yes, the world is established; it shall never be moved;
he will judge the peoples with equity.”
Let the heavens be glad, and let the earth rejoice;
let the sea roar, and all that fills it;
let the field exult, and everything in it!
Then shall all the trees of the forest sing for joy
for he comes to judge the earth.
He will judge the world in righteousness,
and the peoples in his faithfulness. PSALM 96
let the sea roar, and all that fills it;
let the field exult, and everything in it!
Then shall all the trees of the forest sing for joy
for he comes to judge the earth.
He will judge the world in righteousness,
and the peoples in his faithfulness. PSALM 96
Happy New Year 2013
Another Year
- Another year is dawning, dear Father, let it be
In working or in waiting, another year with Thee;
Another year of progress, another year of praise,
Another year of proving Thy presence all the days. - Another year of mercies, of faithfulness and grace,
Another year of gladness in the shining of Thy face;
Another year of leaning upon Thy loving breast;
Another year of trusting, of quiet, happy rest. - Another year of service, of witness for Thy love,
Another year of training for holier work above;
Another year is dawning, dear Father, let it be
On earth, or else in Heaven, another year for Thee. - Francis R Havergal
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